Wednesday 26 November 2014

Hope and Despair

People often say, ‘Things will get better.’ I understand that this statement is made with the desire to uplift and help a person in bad circumstance, but often such a statement is narrow in its ability to help. Please don’t misjudge me and think I’m being negative, I don’t think I am. I do always seek for the positive in life if I can, but I also seek for the realistic and true, and what actually helps, and this is why I struggle with the phrase, ‘Things will get better.’
   From my own experiences I have learned there are usually four outcomes when difficult times strike: the situation might actually get a lot worse and remain the same way; or sometimes bad circumstances actually lead to death or great loss, and things have not got better at all; but of course there is also the wonderful outcome when it does get better, but often it gets a lot worse before it finally gets better.

So, before I go any further, I want to declare the statement that there IS always hope, no matter if it gets worse before it gets better, or the worst does occur, there is always something beautiful to hold on to. Even in the darkest depression, or even if the struggle is terminal, there is hope for friends, for family, or for precious memories that have been shared. And even if those are absent there is almost always time to find hope and peace in many other forms.
   What I’m trying to say is that I personally believe there is always hope if you choose to see it. I will confess this is a hard statement for me to make as sometimes I question if I do actually believe this, but deep inside I most certainly do. I also struggle with my thoughts and feelings about hope as I do know how hope can vanish and be engulfed by despair when depression hits. I’ve had to battle this with constant mental repetition of things I’m hopeful for and things that give me hope. Each person’s list will be different, kind of like Peter Pan and the happy thought that helps you fly. It has taken me many years for those hopes to be relatively effective and there are still times when they are not. At these times I have to use all my power to ride the internal emptiness until it passes and hope can flower once more.

As I mentioned in the previous post I did lose hope right at the initial stage of my health problems because it was so horrible and I didn’t understand it. As I’ve come to understand what I can and can’t do I’ve been able to cope better, and even though a lot of my health has very slowly got worse, especially my stomach, I can cope better because I have become mentally stronger and more patient with my circumstances. It’s not easy and I hate these limitations at times, but it is now part of who I am. I have learned to have hope and believe that I can achieve my goals and do the things that make me happy, or find other things to replace what once brought me happiness. I confess there isn’t much tangible evidence in my own life I can use as proof, heck I can’t see how I’m going to earn a living and find a job that accommodates for my health struggles at this point in my life, but I have hope and I’m trying my best. In time I hope to give a post update sharing that evidence.

Another thing I’ve learned from all of this is that hope is a tricky concept. It can help you fight on and be the power used to overcome challenges, but it can also lead to great disappointment, especially when you hope for better things and the struggles actually get worse. This can be very difficult to deal with. I think goals and expectations have a lot to do with the happiness/hope or sadness/disappointment that can be felt. This is true in a general sense, but more so when you could once do certain things and then can’t, or just not do them as effectively or as much. For anyone who knows me they know my expectations for myself are very high. I want to achieve so much and do so much with my life, but when these limitations first occurred it threw all my plans and expectations into chaos and that’s when despair hit like a meteor. I did not know how I could/can ever support a family if I had one, or travel to new places as I wanted/want  to, or be the friend I had once had been, especially as I couldn’t even take care of myself. It hurt so much being so lost.
   In time, and as the months and years went by, certain things gave me the hope that I needed and I tried to regain some hope on what I could and couldn’t achieve. I had to make my goals and expectations much more specific to me and realistic to my circumstances (Basic SMARTER goals format). Eventually, I came to accept these limitations, generally speaking as I still have days where I scream inside for not being able to say, go for a two min jog without my stomach wanting to throw up, or have a bank account that isn’t so depleted because trying to find work and keep a job without getting ill is so difficult. In those moments of frustration I try to focus on my smaller goals and limit my expectations so I don’t fall into despair and disappointment.

At the most difficult times I try to hold on to even the thought that there is hope and this by itself helps. I tell myself if I keep trying I will sculpture my life into one that makes me happy. I have to believe that this is possible or it certainly won’t be as my fears and pains would consume me. I may not know how it will get better as I have no answer for that, but I have learned the importance of not giving up, and to keep fighting when I can, and resting when I can’t, then fighting again etc etc.

In the next post I will give a personal example and experience of expectations and how they can help and bring hope, and at times also be bad for you if unrealistic or left unchecked.


A link to something I found educational:

This I found interesting. It’s a personal experience by an online/youtube gamer named Drift0r. It’s game-play with very very very profound commentary that relates to hope. Please take a listen to this as his discussion about hope is perfect, especially the last few minutes. (Note: There is one swear word).



A link to something fun:  I love the ‘How It Should Have Ended’ clips and this one is a classic; it’s nerd humour at its best.


Wednesday 19 November 2014

My Physical and Mental Health as it Currently Stands

Disclaimer- I’m going to be very very honest about my personal experiences, as I believe honesty is the key to trust and I feel trust is important when discussing these topics. However, I do know that sometimes we have to be careful with who we trust, as not everyone can be trusted to understand or show compassion. I’ve chosen to be honest in my writing, as I feel I can be, but for a long time I’ve struggled to trust others and kept a lot of things to myself (Honesty and Trust will definitely be a topic for another post). I’ve decided to change that as I feel I’ve learned how to keep a hard shell, while still opening up my heart to write and talk about all these things. It has taken five years to get to this point so I fully understand if anyone reading this struggles to open up or trust others as it can be very very hard.

Here is quick list of struggles as it currently stands: Depression, Chronic Dry Eyes, IBS, Social Anxiety, Panic Attacks and Chronic Fatigue.

I used, ‘Currently Stands,’ in the title, and above, because this is a good link to the main body of this post. It is a good link because health of any kind can change in a single moment; it did for me and still could get better or worse at anytime.
   I guess the best place to start is to give a brief overview of what I was like as a child because it will provide some context. Overall I remember being a happy child, despite being very emotional and sensitive (crying a lot). The easiest way to describe me is to tell you that all I wanted to do was play football and run around, and that’s what I got to do so I was generally happy. I’m sure I was more complex than that, but the previous statement is very close to the truth. As a teen, however, the negative side of my emotions became very intense. I almost always struggled with depression and suicidal thoughts, but I learned to rationalise them as best I could so I didn’t do anything that would hurt the ones I loved, although there were many times, and still are times, that I would have switched an off switch if there was one (It’s far more complex than that and I’m sure depression will be discussed more in another post). I would also have mood swings boarder-lining bi-polar and this stemmed from being a very emotional person and not being able to control them in a way that I could experience the emotions without letting them impact my day to day life. Day to day living could be very intense both positively and negatively.
   These moods, and emotional intensity, were relatively under control by the time I was 17/18 and went to university (It was still a struggle, but manageable). I also remember having joint pains at uni and my chronic dry eyes was diagnosed at this time too- in brief, this limits my computer screen time and reading because my eyes burn and feel like they are being rubbed by sandpaper. No matter what drops or remedies I’ve used to help they actually make it worse. Resting them by listening to audiobooks and podcasts has helped, and sleep is really the only thing that takes the edge off of the pain.
   Anyway, as I was saying, this was all manageable and it wasn’t until the end of university that everything became a lot more challenging. In September 2009 there were signs of the IBS (Irritable Bowel Syndrome) occurring and I began to be sick a lot and lost a lot of weight in several months, only being 10stone and 5ft 8inchs in height, losing over a stone was not healthy. At this time I had to start testing what I could and couldn’t eat. It was a very long and unpleasant process. Once I figured out what I could eat my diet became, and has stayed, very regular. My diet also became very strange as fluids seemed to make me sick, except apple juice so I started only drinking apple juice, on rare ‘good days’ I can branch out a little, but not much. Various stresses both physical and emotional also make my stomach be sick or I lose my appetite, and I have to work hard to do what helps me get my appetite back. If I do too many things nausea also becomes an issue and this is really horrible.
   At the same time, winter 2009/10 sleep problems occurred and adrenaline kicked in a lot, which made it impossible to sleep at times and I started to feel fatigued most of the time. Also at the same time, December 09, I had graduated from university and began working nightshifts as it was easiest job as being a concierge was physically easy and relatively mentality stress free. Not being in that job anymore I will confess I slept on shift in the early hours a lot, as without that sleep, and naps during the day, I would have become even worse and not been able to earn money. That sleep never effected my actual job.
   About the same time I also started getting panic attacks, but didn’t know what it was so it was doubly scary. This had a massive impact on my life at the time as whatever was happening to my brain chemistry and psychology meant I was afraid to be around people. This fear manifested itself in a strange way which was my arms becoming hypersensitive. Even the slightest touch felt painful, which spiralled into a psychological fear of being touched on the arms. Even the very thought of it would make my chest tighten, breathing become rapid, and sweat break out. I struggled to understand it and with help from the doctor we did clarify what it was, but only once I had a very serious episode. Once I knew what it was it was time to learn to cope with it, but a detailed discussion on this will come in another post.

As a result of all this I had to stop working and fix myself as I had an epic breakdown. I felt I had lost complete control over my life and had to build it again. At the start of this rebuilding I did lose hope as I saw no future for myself in any way that was happy. As a result, the depression won over and I did take a number of sleeping pills, pain killers and relaxants which thankfully only knocked me out for 24 hours; I just wanted peace and to stop the pain I felt, and depression can obliterate all rational thought. I know such a choice is hard for many people to understand, but it was how I felt and I gave up the fight. I do not justify my action, or confess this bad choice for pity, but I share it to be honest about even the darkest details of the journey. This way you can see the whole picture and not a distorted one, and then you take what you want from all the things share.
   After this I was fortunate to have help and support, and I realised such a course of action was not the right one and I have built up a bouquet of motivations to help me avoid this choice again. Repetition of those motivators helped keep me going, and still does, and I had some CBT (Cognitive Behavioural Therapy) at that time, and since, which has helped.
   With this, and lots of rest, I started to get some control again and learned to rationalise the fears by repeating calming phrases and making sure I regulated my breathing too as that helps when panic attacks come. Avoiding trigger situations also helps but this is a tricky one as completely avoiding triggers can escalate the problem. Once relatively rested I then tried to do some exercise to put on the weight as eating alone wasn’t working. Very slowly, I did feel stronger and managed to keep everything balanced. I went back to work in Sept 2010, and although I had to take several weeks off, sometimes a month, from time to time, my life resembled some sense of balance and productivity.
   There were other things that helped, which I’ll discuss later but this overview will set the scene for more posts that are to come. A lot of what has been discussed relates to Hope and Despair and this will be the title of the next post.

Educational Link:
OCD (not one I struggle with, but understanding mental health is all linked so this is just as important to learn about and understand) and Anxiety:


Depression and Bi-Polar:

Fun:
Pinecones!